Dealing with Chronic Kidney Disease

Imagine being informed that your hours old baby has developed Acute Renal Failure. What that means is that for some reason the kidneys have stopped doing their job. The outcomes are not good, but with the appropriate treatment and care should be fatal…. Yet! The infant rose from a mere 8lbs 13oz at birth to 12lbs in less than 24 hours. The NICU staff worked with the Pediatric Nephrologist to helps the baby’s’ Kidneys start on their own. Within 24 hours the staff had succeed in waking up the kidney’s. What does this mean for the child? The cause of the Acute Failure had to be determined to see if this was just a fluke or if the Kidneys would eventual fail. As a parent and being in the medical field, the outlook was not clear as to what the infant would need in the future. Two very concerned parents praying for the best but mentally preparing for the worst. The questions of why did this happen? Could something have been done to prevent this? Will my child live to be a Father/Mother? Having a medical background, both parents realized that this was not because God was punishing them, but he was tasking them with a course that would make them a very strong family. Faith and Medicine go hand in hand. Regular visits to the Pediatric Nephrologists getting urine and blood each visit and watching the trends was a part of life. The shock to the father was when at the tender age of 18 months he was told the kidneys are working well enough that the child would not need a transplant very soon. This was not something that had even been brought up. Fast Forward 16 years. Child continue regular visits with the Pediatric nephrologist’s and is in what was called Stage 3 CKD (Chronic Kidney Disease), Although he was not progressing towards the worsening stages the parents had already been made aware that it could happen at any time. The Child was active in after school activities and doing fairly well with adjustments to their medications. In February 2015, The child became very symptomatic, complaining of extreme fatigue, having difficulty remembering things Nausea, The Lab work showed that level of function had dropped from 33 to 18 in just a couple of weeks. That being a significant drop might be indicating that the kidneys were about to quite being able to filter the waste products well enough and that the child may need to start Dialysis very soon. The child would also need to be worked up for a transplant. The Nephrologist realizing that the child would be turning 18 before the transplant process to get the child on the list an active would be very difficult. The decision was made to work up the patient through the pediatric transplant center as the wait time would be less.

Having delved into this scenario what would the complications be that could prevent the patient from getting listed and receive an organ sooner than later? To start with there are not enough Organ donors to get all that need transplant an organ. They must prioritize. The best organ donor would be a family member that had the best match. This is called a living related donor. The next best would be someone else non-related that was a match and was willing to donate. Having neither of those available then it would come from a cadaveric donor. That means some that has marked the box on their Driver’s License to be an organ donor and when they are fatally wounded our traumatized in an accident The Organ sharing network goes into action. All this is regulated by the Federal Government and Medicare. They set the standards and the way the list is kept. This is to prevent someone with a big pocket book getting moved up to the top over a patient that has been waiting for up to three years. The standards change once the patient reaches the age of 18. As a pediatric patient the patient would be listed when their value reached 22. At the age of 18, the value for them to be listed is 18 or below. The problem with a value that low ids will the patient be able to remain healthy enough to receive the kidney. The lower that value the more chance that the patient will need to be started on dialysis. The value I have referred to is the GFR (Glomerular Filtration Rate) and the Table for the stages of Chronic Kidney Disease were downloaded 02/19/2016 @ 01:46 from Renal Function – Wikipedia



This issue has become a question to me. Why do you wait to work up pediatric patients until they are so close to needing dialysis that they are almost too sick to survive the transplant surgery and recover? Preventative measures would be to start the process for any Renal patient that has reached stage 3, the could be put on the list and start accumulating time at a slower rate that say a stage 4 or stage 5. If there was a kidney available that had enough points to match the could be call as an alternate maybe even a 3rd or 4th alternate. Changing the rate required for pediatrics at 18 and requiring them to fall under the adult guidelines makes no sense. Of course the ideal situation would be to have enough donors that were willing to help another human being on the list that the wait time would not be so long.

I am not complaining about the system in as much as It is a personal issue as my child is the model I gave. We finished all the work up and when it was time for the final labs to qualify the GFR that had been 18 and 19 went up to 22 to 25. Good news as it means no dialysis but it also means can’t be on the active list.

If you would like more information on Chronic Renal Disease just click on the following link that will take you to the National Kidney Foundation website. National Kidney Foundation.


What Is Best for America

I will preface this post with the Statement: Listed below are the opinions of the author. It is not the intent to offend or discriminate. The statements are as factual as the author could check. Your choice is not to argue with or agree with the opinion, but to form your own opinion. Eleanor Roosevelt once said “No one can make you feel inferior without your consent.”

America has lost her brilliance over the years because of the apathy of the people to care about what can be done as a group. 

When our framers founded this country, the set forth how our government should operate. They made sure that there would be no “State Sponsored” religion, People would be free to practice their religion without fear of government restriction. The Press would be free to print whatever it would print, and people would have the right to assemble and speak their opinions.

The founders also based this on the Christian Bible as that was what the people of the colonies referred to. Saying a prayer in a public building was allowed, each session of Congress was started with a Prayer, The Supreme Court of the United States has on its Walls of the chamber The Ten Commandments. Before we get into that invalid argument that the constitution states there will be a separation of church and state, read “The Ten Commandments”, Tell me which of them is not common sense. For those that do not believe in God, What about the other nine? Agnostics believe in a higher power so all ten could apply.

Why then do I say that the brilliance has been tarnished? Simple answer is that our government has lost touch with the meaning put forth in that Document. The Congress is supposed to listen to ALL of the people that they represent and form their bills so that it is of benefit to all not just a few! When both houses have agreed upon the bill, they send it to The President to either sign into Law or VETO and send back to congress which then can either fix the language or override the veto. Sounds fairly simple…. It is unfortunate that the elected officials have forgotten their oath to support and defend the Constitution. In that document it enumerates the power of the Government. It divides it into three branches, Legislative, Executive, and Judicial. This is so that there is to be checks and balances to prevent One branch from taking total control of the Government and relieving the citizens of their rights and their liberties. The Senate does not have the authority to spend Money. The House of Representatives cannot ratify a treaty. The President can issue an Executive Order, but that order should not circumvent the Congress or the Constitution, nor can it ratify a treaty or appropriate money to fund something that Congress has not approved. I saved the Supreme Court for last. It was meant to be the weakest of the three. The courts duty is to hear cases that have been brought before them to determine if those case follow the Constitution. The Judges are nominated for appointment by the President and go through confirmation hearings in the Senate. That committee is supposed to determine if the appointee is worthy of the post. The committee is supposed to send the Name to The Full Senate to either be Confirmed or Declined. The nominee should remember that they are being appointed to the Bench for Life and that they are to read the case before them and see if it meets the Constitution. They should not have an agenda to change the Law or to Interrupt their vision of what the constitution should be. The Constitution was written in very Plain English and not a bunch of confusing legalese! Congress should do the same with their legislation.

I have laid a lot of issues on the Government as to the tarnishing of America’s Brilliance as they are responsible for their actions. I must now state that it cannot be all blamed on them. The people have to take ownership in that responsibility as they are the ones that sent them to Washington. I simple ask each and every American to carefully consider their choice. Ask yourself what John F Kennedy asked the nation in his Inaugural address “Ask not what your country can do for you, ask what you can do for your country”. The Government was never intended to do everything for the citizens, People should not get paid for not working, not looking for work, or just being Lazy. Unemployment benefits should not last forever. People the come into this country illegally should not be able to receive benefits and services for which they have never worked for. Illegal means Illegal and people that break the law (Illegal Entry into the country) do not have the “Right” to all the benefits of those that are here Legally. Employers that hire Illegal Immigrants’ Should have to pay hefty fines. The problem is that many Americans feel those particular jobs are beneath them. Companies are sending more jobs overseas and across the border thus creating more unemployed. Why do they do that? Because the American worker expects to be paid an outrageous amount to perform the lowest entry level jobs. Minimum wage was set to protect the worker from being taken advantage of, not to give them a lifestyle that many have worked hard for many years to achieve. Common sense tells one that if the minimum wage is elevated to $10.00/hr, the effect will be felt in everyone’s pocketbook. The cost of everything will have to be increased to keep the doors open. A good many of those doors will close forever. This is not the American Dream!

If you have made it this far, it is time to provide solutions for the above problems. The task is quite simple, be proactive, get involved with helping others. Ask the hard questions to the candidates running for office at all levels. Are they for the Constitution and are willing to follow it to the letter? Do they believe that our Government should spend no more than it legally takes in? Do we believe in sending all that have entered this country illegally back to where they came from and give them a chance to enter through the legal channels? Next Make sure all that are able to vote can get to the poll to exercise their privilege without being told to vote for any one person. They should be allowed to make their own choice. That transportation should be non-partisan! Finally, it is time that we quit rewriting history so as not to offend people. Tell the truth about how this country was founded and the problems it endured. Show them how many problems were solved by people standing up for the rights of others. The Declaration of Independence states that “All men are created equal under the eyes of God” When that was written it was not to exclude anyone! So is the Constitution meant to be for all of “We the People”. Take ownership and responsibility!